In the living room of a friend of mine, there’s a coffee table crammed with photographs. One stands out: four young men in tuxes taken three years ago. They’re all grinning, in classic college-buddy group-shot mode. Of the four, two are now dead. One died two years ago, the second in early November, when Kaposi’s Sarcoma (KS), the cancerous lesions common to people with AIDS, entered his lungs. Tom, the third of the tuxes, was diagnosed with the AIDS virus (HIV) five years ago. He found out his status soon after burying his lover of four years, who also died of AIDS.
Three years ago, despite treatment with the anti-viral drug AZT, Tom came down with his first major AIDS-related infection. His skin is now covered with KS. Because of an intestinal infection that doesn’t enable him to digest food, an intravenous drip is connected to his heart and feeds him fourteen hours a day. His immune system is so weak that the plastic line keeps getting infected, so he has to go into the hospital from time to time to have it replaced. His lover of the past five years, Steve, the fourth tux, is HIV-negative, and is preparing for a newon his own. Five in their close circle of friends have died in the past month alone.
This kind of familiarity withis unique in modern times. With the advent of effective hygiene and medicine, has long since ceased to be common among young people. If anything, has grown more distant for the majority, a tragedy occurring either very occasionally in the otherwise healthy or among the old and frail, who are safely hospitalized beyond our immediate awareness and responsibility.
But formen in America in 1990, none of this applies anymore. is less an event than an environment. One hundred thousand people have now died of AIDS. This year almost as many have died as died in all the previous years put together. Ten times as many will die as have died. More young men have lost their to AIDS than died in the entire Vietnam War. Forty percent of these have been among I.V. drug-users and others of both sexes. (Nothing here is designed to diminish their predicament.) But 60 percent have been among men. While the outside world thinks the worst is over, 800,000 people, on the lowest estimates, now face the hard task of actually dying.
This fact is transformingfor an entire section of America. Largely invisible and almost incomprehensible to outsiders, men and their families now alien to modernity’s rhythms. is ubiquitous. Friends and lovers die with random, rapid consistency. Time horizons shorten. is mentionable again. Indeed, it is unavoidable. men now essentially as medievals among moderns: habituated to mortality in a world of health, besieged by in the midst of oblivious . The cities within cities in America are in this sense medieval communities. The dying coexist with the living, and the dead clutter the address books of the dying as bones once festooned the charnel houses of medieval city-dwellers.
There is a further twist.men must not only as medievals among moderns, but also as moderns, still wedded to the contemporary alienation from mortality, yet forced into encounters with extinction that the broader culture finds strange, distasteful. This dichotomy—modern and medieval, living and dying—is creating divisions among and within men too, divisions as hard to acknowledge publicly as they are privately unavoidable.
It is a commonplace that AIDS has united the"community" in newfound fraternity. But this is at best a half-truth. There are, of course, countless stories of reconciliation and courage in the face of the virus. Nothing here is meant to slight the truth of those experiences. But AIDS has also unmistakably widened the rifts among men. There are those with the virus, and those who are free of it. There are those who know many who have died, and those who do not. There are those who are dying and those who are not. In this crucible of solidarity, the divisions already in society are being cruelly exposed. Socially, racially, politically, AIDS is quietly tearing the world apart.
Phil Zwickler is a fiery, stocky, fast-talking former filmmaker who has AIDS. He now runs a newsletter for people with AIDS and recently made a gripping short film called Fear of Disclosure, about relationships between people who test positive for HIV and people who test negative. I met him in his small, ramshackle office in downtown Manhattan. His lover, Jimmy, died a few years ago. Zwickler was barred from the funeral by Jimmy’s family, and lived with the fear that he would die too and the guilt that he may actually have infected a man he loved. All this I learned within minutes, a function of the candor many people with AIDS display. After a few minutes of questioning, Zwickler’s candor grew. "I’m angry at you," he said. "I know you won’t have sex with me, not because of what I look like, not because of who I am, but because of a virus in my blood."
Perhaps the commonest misconception about the impact of AIDS amongmen is that it is restricted to the sick and the dying. In fact, its impact may be just as powerful among the well and the living. The vast majority of HIV-positive men are healthy and asymptomatic. And no HIV-negative man has lived without the risk and fear of HIV infection. and are not separate issues, meeting occasionally at the bedside or the grave. They are wedded to each other.
The points of contact generate friction, of which Zwickler’s passion is a sign. The divide between healthy HIV-positive men and healthy HIV-negative men has not yet been broached in the mainstreampress. But it’s evident in the personal columns: "HIV+ seeks same"; "Fun bright, passionate GWM, 41, 5’8", 148, HIV-, wants to meet similar quality men"; "GWM, 40, 6’ 200lbs, looking to meet younger GWM 20-29 for a lasting monogamous relationship. Disease-free as I am." This subtle, pervasive segregation among men is a growing feature of . It has its roots in fear, although, paradoxically, not so much the fear of actually contracting HIV anymore. It’s quite clear now that the virus is extremely hard to catch. Most men assume that kissing, oral sex, and anal sex with a condom are permissibly safe activities. So the phobia of sex with someone who is HIV-positive has an element of the irrational about it, as far as medical risk is concerned. "Fear" merges with stigmatization of the sick. "They’re the biggest hypocrites in the world," a positive man told me of wary negatives. "They hide behind this knowledge of safe sex and go to bed with anybody. But as soon as they find out you’re positive, they drop you like a stone."
There is also simply the gulf of experience between those with the virus and those free of it. Coming to terms with being HIV-positive is, for many, a transforming experience, and it becomes difficult to form relationships with people whoseare untouched. “Ultimately,” an HIV-negative who’d had a failed relationship with an HIV-positive told me, “that person is having an experience you’re not having, and you’ll never know him, however hard you try.” Another HIV-positive with an HIV-negative lover spoke of the broader difference in attitudes the virus generated. Daily, petty squabbles, which obsessed his lover, seemed irrelevant to him: “I once screamed at my boyfriend, `There are times when I wish you were positive, because none of these things would mean anything to you at all.’”
This dynamic of mistrust, fear, and stigmatization has further complications. One man whose lover became ill with AIDS told me he found it hard to take the HIV-test, not just because of his own fear of, but because of the barriers it might have erected between them. He waited until his lover died, and discovered that he was negative. With that, he also saw the real reason for his earlier avoidance: “At the back of my mind, I guess I was afraid that I might have given it to him. That I might have killed him."
The danger of mutual transmission is a constant source of friction, and there is no escape from it. Even an HIV-positive man can be made sicker by re-infection with the virus, whether from his own lover or from someone else. The result is a curious turn of fate. Far from bringing couples closer together or encouraging monogamy, AIDS has actually pushed people apart. It has made intimacy harder, trust less tangible, selfishness more acceptable. It may not be what some have called “sexual apartheid,” but it does amount to a kind of sexual and emotional zoning, an invisible wall between men who are themselves walled off from an outside world.
The effects of this can be seen everywhere in, from the cult of the healthy body in body-building to the nervous inquiries on the second date about health. The divisions between HIV-positives and negatives are also reflected in politics. “Queer Nation,” a radical offshoot of ACT-UP, the AIDS Coalition To Unleash Power, concentrates on countering homophobia with a range of actions from kiss-ins to marches urging to bash back against anti- violence. To outsiders they seem just one more gang of activists. Among some AIDS activists, however, they’re known as “ACT-UP for Negatives,” people for whom the fight against AIDS is not so personal and therefore not so desperate. San Francisco’s ACT-UP recently split between a faction focused entirely on AIDS and another more concerned with other issues. Behind the split lay positive-negative tensions. Alongside the usual rifts in any activist group between radicals and moderates, assimilationists and separatists, in today’s politics there’s the added factor of who has HIV and who doesn’t.
These tensions inevitably lead to a raising up of the drawbridge of emotional commitment, to a retreat in the face of fear. In some ways safe sex is the apotheosis of this self-isolation. Safe sex can be the outcome of ain which certain risks—of love, commitment, selflessness—are less likely to be taken. It’s revealing that, according to safe sex counselors at Men’s Health Crisis (GMHC), the premier AIDS-care organization in New York, the most common “relapsers” from safe sex are not promiscuous, anonymous experimenters, but couples in long-standing, healthy, monogamous relationships. By protecting themselves against the virus, men also find themselves protected against intimacy.
This has led not to an abandonment of sex, but to a revival of it. As sex has become not merely physically but emotionally safer, it’s become more popular. The back rooms, bath houses, and compulsive anonymous sex of a decade or so ago may have gone. But so too has the terrified celibacy of the first stage of the epidemic. “Sex is completely glorified and accepted. A ‘70s culture has come back,” a youngjournalist told me.
The club scene has also experienced a revival. Two of the more popular New York bars these days are The Men’s Room and Sod-O-Mee. The former is a pounding cavern, with sixty-foot ceilings, slides of nude men on the walls, and go-go boys, steroid-pumped to bursting, gyrating on boxes amid hundreds of mainly shirtless men. The latter looks like any small dance club, with one difference. Above the dance floor there’s a giant video screen showing pornography as the somewhat conventional crowd below bops to Madonna. All along the bar, video screens show the same genital images. Go-go boys in cellophane jockstraps sway in front of them. It’s a symbol of a new sexuality: sensual, garish, safe, for the first time a full reflection of the phrase “mutual masturbation,” in which emotions, as well as bodily fluids, are kept carefully apart.
Salem United Methodist Church is in the heart of Harlem on 129th Street and Seventh Avenue. One evening last October it was the site of a “Service of Love, Remembrance, and Hope” for people with AIDS. The high point of the “Harlem Week of Prayer for AIDS,” it involved several local pastors. Perhaps because of the rain outside, it was a small congregation, with almost as many people up front as in the pews. The music was from the Addict Rehabilitation Gospel Choir, the first hymn: “On Christ, the solid rock, I stand; All other ground is sinking sand, all other ground is sinking sand.”
We were called to prayer. The readings were read. A few people paid tribute to those who had died of AIDS. A young man in African garb recited a poem, calling upon all those black men who had died of AIDS to return to the fold of black history: “Jesus is calling, for you and for me.is coming for you and for me. Come home, all you who are weary. Come home.” A large woman shuffled forward, dressed in a checked cardigan and a flattened black felt hat: “In my little corner of the world,” she said, "I saw my son slip away. But I looked to the hills whence cometh my strength. And we kept the faith." Tentative amens echoed through the building.
The service was faintly unreal: a scattering of embarrassed people focusing onas if it were still an occasional, tragic intervention in normal . The point of the evening, it turned out, was to force the assembled pastors, who had done very little to acknowledge the scope of AIDS in their congregations, to listen to the Rev. James Forbes Jr., the pastor of Riverside Church.
His text was the parable of the Good Samaritan. His aim was to confront the pharisaism of today’s Christians toward those with AIDS. He spoke of aparishioner. “He asked me, as he lay there dying of AIDS, he said, ‘What’s God’s attitude toward me? ... Don’t tell me something just to cheer me up. Just tell me the truth.’ ‘The church went silent. For the first time that evening, the subject of homosexuality—not AIDS, not I.V. drug use, not poverty—was addressed. “What he wanted to know was not whether God would forgive him, not even whether God would love him, but whether God would affirm him.” Forbes turned to look at the pastors: “I wonder very much what you would have told him.” After an awkward pause, he continued: “There is a part of the Church that can only deal with respectable problematics. But grace is able to deal with any problematic.” People shifted in their seats. “We have to deal with sexuality. Why do we have to allow Oprah Winfrey to tell the truth before we do?” A handful of people walked out.
AIDS is now affecting black and Hispanic New Yorkers more than it is affecting whites. In 1986, according to New York’s Health Systems Agency, 30 percent of AIDS cases were black and 23 percent Hispanic. Now that’s 31 and 26 percent, respectively. By 1993 the percentages are forecast at 35 percent and 30 percent. Thirty-seven percent of black and Hispanic AIDS cases are due totransmission; and experts believe this is an underestimate, since many black and Hispanic men would sooner admit to being a junkie than to being .
This, perhaps, is the most alarming feature of black. In addition to the familiar problems of urban minorities, poor black men also have to deal with extraordinary homophobia. In talking to minority men with AIDS, it was hard to avoid the impression that the level of denial is measurably greater, the pain more intense, the isolation more complete than among whites. Stories of hushed burials, of families collecting sons’ bodies from hospitals and not allowing friends or lovers to pay tribute, of bashings and neglect are commonplace, and usually told by people who request anonymity. Even among elites—perhaps especially among elites—homophobia is intense. Of the fifty-nine board members of the Black Leadership Commission on AIDS, the core minority group in New York confronting the problem, only one, project director Gregory Broyles, is openly . He’s had to fight hard to get the fact of homosexuality acknowledged at its meetings.
“By being black, I’m separated from the whitecommunity, and being , I’m separated from the African American community,” is how Broyles puts the black predicament. The black press rarely deals with men with AIDS: recent issues of Emerge and Spin, guest-edited by Spike Lee, for example, focused on the threat to women and children. According to black men I interviewed, there is even a belief among many young blacks that only whites are , and therefore AIDS is irrelevant to blacks. Lies about the cause of early merely perpetuate this myth. The truth is, a generation of young black men is disappearing in a silence broken only by the occasional, sparsely attended church service.
Take Kevin, for example, although that’s not his real name. Heon a run-down street in the middle of Spanish Harlem, the only black man on the block. He hasn’t seen any family members for nineteen years, and most of his friends are white. Few neighbors know he has the disease, although some know he’s . He has heard women whispering “faggot” on the street as he walks by. It’s a term that can be more than psychologically wounding. A man with AIDS on Kevin’s block got badly beaten up recently when his neighbors found out he had the disease.
The walls of Kevin’s dilapidated apartment are lined with classical music tapes, the floors cluttered with dumbbells, a reminder of the days when he was a body-builder. Twirls of flypaper hang from the ceiling like garlands. Kevin got really sick two years ago. He found he couldn’t make his second shift as a security guard because of acute chills. He ended up in the hospital with tuberculosis. Since then he’s had pneumonia, herpes, and KS. As we talked he scratched the KS lesions repeatedly, and had recently taken to picking at them with needles to relieve the itching. Halfway through our conversation, he suddenly said, quite calmly: "I can’t see your face. I can’t see you. I’ve got these spots in front of my eyes. Strange little horizontal lines." He was probably in the early stages of going blind.
His isolation is triple: race, sexuality, disease. In his first stay in the hospital, for TB, the three had come together: “A doctor came in and said would I like to go to the tenth floor? I said no, and he said wouldn’t you like to be with your own kind? And I never knew what that was. ... So two doctors came in and they said to me like I was getting a Christmas present, they said, yes, you’ve got it. And I said, got what? And they said, you’ve got AIDS. I said how much longer have I got? And they said three years at the most.” That was two years ago.
When blackmen are visible, and the real cause of their acknowledged, the reaction is often vicious. “All we’ve ever had is the power of the dick, the power over women,” one young black man told me. “So if one dick likes another dick, that’s a problem. They think: this faggot is in my community. I can’t have that.” The younger generation seems to be getting more—not less—bigoted. Black role models, like Eddie Murphy, crack jokes about people with AIDS. Rap spews anti- venom across the airwaves. As the black family has disintegrated, the pressure on middle-class men to get married gets stronger. One man told me the worst comments he had ever had were from women, resentful of a “good man” refusing to have a family.
It’s no surprise, then, that the AIDS activist groups are overwhelmingly white. What’s odd is their silence about the homophobia affecting minorities. ACT-UP, while protesting the white Catholic Church’s stance against safe sex education, has failed to attack black churches that follow the same policy. The Minority Task Force on AIDS (MTFA), the only black group fighting AIDS on the streets of Harlem, holds safe sex workshops in black churches, which are required by pastors not to mention anal sex, condoms, or homosexuality, unless specifically asked about them. According to activists I spoke with, many pastors in Harlem are themselves closetedmen, who mask their own homosexuality by refusing to acknowledge it in their congregations. Yet ACT-UP has not “outed” these men or even protested their negligence. Such an act, activists explain off the record, would be racist.
A large part of the minoritypredicament is the result of whites’ reluctance to face a problem that does not affect them. But just as problematic as white neglect is homophobia among healthy, heterosexual blacks. One black AIDS activist I spoke with lamented that, if the minority groups fighting AIDS were to disappear tomorrow, nobody but a few white people would care: “Our white allies drive us crazy, but they’re still our allies, and our racial compatriots don’t give two shits about us.” Broyles of the Black Leadership Commission on AIDS complains that elected officials never see blacks lobbying on AIDS, and so it is hard to attract funding. Ronald Johnson, who runs MTFA, blames minority officials as well: “There’s not one black or Hispanic legislator who has done a goddamned thing about AIDS in this city, state, or country. And that’s disgusting.”
MTFA’s offices are a few connected rooms in a dilapidated apartment building on 115th Street. MTFA has a handful of staff, and doesn’t even have the word AIDS written on its door, for fear of reprisal. The contrast with the gleaming, five-story office block of GMHC—with its designer logo and color-coded office suites—could not be more acute. According to Johnson, the plight of blackmen with AIDS is dire not simply because of all the other problems affecting the sick—crime, poverty, drugs—but because AIDS has not even begun to enter the collective consciousness. Changing behavior is virtually impossible when the very people at risk don’t acknowledge that they are at risk. A bathhouse still operates in Harlem. Denial by men of their own homosexuality is the norm. Drug use is commonly related to sex: “For black men who are still struggling with guilt over their homosexuality, drugs help them get over that guilt hump in order to be able to have sex at all,” Johnson explains.
The group most able to help—the educated black middle class—is made up of the very people, according to Johnson, least willing to confront the taboo of homosexuality. The Dinkins administration, he claims, is more comfortable dealing with Tim Sweeney, the white head of GMHC, than with Johnson, who is black: “I broke one of the unspoken rules of the black community: if you’re a homosexual, keep it to yourself.”
Among Hispanics, the situation is more acute. The rate of infection is growing fastest in this population, yet if anything, the denial is greater than among blacks. Homophobia is arguably more profound among Hispanics than other ethnic groups, butsex may be more common. According to Hispanic men I interviewed, anal sex is very prevalent among “straight” Hispanic men. One now openly man said he’d had far more sex with his straight male friends when he was in the closet than he’s had since. The deep taboo, he argued, is not against sex between men as such, but against admitting it and forming relationships. This is exactly the toughest scenario for AIDS education: those most vulnerable to the disease are those least likely to admit they’re vulnerable.
TheHispanic population in New York is concentrated in Queens and isolated from white . There are Hispanic clubs—Studio 88, La Escuelita, The Love Boat—and a Hispanic culture, which, according to the few Hispanic men prepared to talk about it, is more close-knit and monogamous than white . This isolation makes access to help difficult, as does the immigrant experience: “Their families don’t know, they don’t have legal papers, they don’t have good access to treatment,” explained Luis, an HIV-positive Hispanic man in his 20s. “A lot don’t speak English. And they’re afraid that if they go to the hospital, they will get deported.” He plans to tell his mother about his condition when she visits from the Dominican Republic this month: “It’s kind of sad,” he points out. “She said one day that if I ever got sick, she would die. The pain will be something like that. So you see how scary it is for me to tell her. Of course, she will not die. She will .”
Among the varieties of, the minority experience is the least accessible. Often the first thing the broader society sees of it is an emaciated black or Hispanic man in a hospital, adamantly claiming he’s an I.V. drug-user. And it’s no accident that as the disease has shifted to these populations, it has become less visible. In the pew in front of me at the Salem service a thin young black man stood on his own. From time to time he left to go to the rest room. Throughout, he mopped his face and neck with small pieces of brown paper, and clutched his body with his arms, cradling himself into temporary comfort. I didn’t know whether to talk to him. Those around looked through him, caught in that awkward gap between patronizing and addressing his pain.
After the final hymn, we talked. When his illness became intense, he was forced towith his mother and give up work. He lived in the South Bronx but was still here at 11:30 p.m., because he wanted “to do something.” And besides, he couldn’t stand being trapped in bed any longer. He was in touch with GMHC, and was supposed to go to a clinical trial for a new experimental drug that day in New Jersey. He had felt too sick to go.
So much has been written about ACT-UP that it’s easy to overlook its most compelling characteristic. Perhaps a majority of its youthful members will be dead in a few years’ time. They are, of course, not alone in this. About 30 percent of GMHC’s staff, for example, is thought to be HIV-positive. But the combination of nearingand political activism makes for a unique phenomenon. ACT-UP is not merely a brigade of rights activists. It is not even a countercultural crusade for the rights of others. It is a movement primarily designed to prevent the demise of its own.
Most are candid about this: “For me, it’s therapy,” a wiry, HIV-positive former Wall Streeter told me. “I’ve always admitted that. But it’s not the therapy of comfort. It’s the therapy of seeing that change can happen. It’s self-empowerment in its true form. It’s a sense of power.” He said this last word with the curious intensity of many ACT-UP members. They are high on power, a high intensified by the liberation of coming to terms with one’s own mortality.
The high has a drawback. It generates what can only be called fanaticism. Artfully crafted slogans baldly state the message: “Silence =,” “We Die. They Do Nothing.” One poster shows a picture of New York’s commissioner of health, Steven Joseph. The slogan: “Deadlier than the virus.” Designed by graphic artists and advertising executives, they have a sharpness that echoes the look of mass advertising and throws it back in the face of its complacent consumers. Stretched across the chests of men who would look at home in Soloflex ads, the logos come close to morbid camp. The result is a kind of designer revolt, an AIDS aesthetic. Halfway through an ACT-UP meeting, the shout goes up: “The merchandising has arrived!” and there’s a rush to the T-shirt counter.
This aesthetic is allied to intelligence. The Treatment and Data Committee—a subgroup of ACT-UP—has helped revolutionize federal procedures for the testing of experimental drugs through scrutiny of the bureaucracy and science of AIDS. It has engendered respect and admiration—as well as frustration—among scientists and bureaucrats. Its latest campaign is to make five major opportunistic infections treatable within eighteen months, by speeding up the drug-trials process. In stark contrast to the sometimes hair-raising antics of the rest of ACT-UP, T&D is coldly rational—and effective. T&D pressured Burroughs Wellcome to halve the price of AZT, the only effective (but flawed) treatment for HIV.
Still, there’s something unsettling about ACT-UP that is not easily allayed by understanding its context or its success. The intelligence is sometimes distorted by the Manichaean vision of those confronting. It’s a matter of dogma to ACT-UP members, for example, that there’s no moral difference between negligent complicity in the AIDS crisis and the act of murder. Yet there are clearly complex arguments about levels of AIDS funding that won’t fit into this framework. Cogent arguments also exist for “outing” powerful closeted men who are actively homophobic, but in the hands of Outweek, a new magazine closely allied to ACT-UP, outing has become a way of enforcing ideological conformity on illiberal lines. Articles in Outweek have backed taking away free speech from anyone alleged to be homophobic and have urged the use of violence against straight “oppressors.” A recent cover featured a lesbian pointing a gun at the reader, with the headline: “Taking aim at bashers.” Another proclaimed: “We Hate Straights.” That some of this material is presented as camp merely heightens the ugliness of the message.
The ACT-UP meeting I attended in New York was held in a theater, the drama taking place as much in the auditorium as on stage. Unlike other radical groups, ACT-UP is, internally at least, democratic—sometimes painfully so. The meeting went on for hours, accommodating loquacious bores who were each allowed their say. There seemed no moral pressure on dissent, or even on tedium; merely ecstatic cheering to greet the elect.
The meeting’s main agenda was a forthcoming day of action that would shut down the major traffic arteries in New York on December 10. Activists were going to raid the subways, lie down on bridges, clog the freeways, descend into tunnels—all to press the case for socialized medicine. The objections from the floor were ones any sane activist would make: the demo would backfire, it would enrage commuters, alienate potential supporters. It might affect sick people, caught in traffic jams, even cause. And the date clashed with another planned demonstration for national health care.
Little of this carried any weight. At the worry about the sick came a shout from the back: “We’re sick.” At the chance of: “We’re dying every day.” A young woman spoke from the balcony: “This is a great action. This is my fantasy action.” Someone yelled from the stage: “Desperate situations require desperate means. It’s not going to get better. It’s going to get worse. If Larry Kramer’s sermons haven’t moved you, move yourselves!”
Kramer, an HIV-positive playwright in his 50s, founded ACT-UP. Sitting on the stage in a large smock, he smiled quietly throughout, like an old, wise child. His presence among the largely young men and women was a little like that of a guru, except, unlike most gurus, his influence was not to moderate the passion around him, or to direct it to more contemplative ends. It was to intensify it. He began the meeting with a soft-spoken announcement that he wanted to set up a group to do target practice, to learn how to use guns against the police and-bashers. His point in the demo debate was to back the radicals. He mentioned last year’s demo that broke up a mass at St. Patrick’s Cathedral, and provoked a storm of hostility: “We couldn’t have gotten worse publicity than the Church action, and that put us on the map. … Don’t use the backlash argument as an excuse. They’re not going to like us. They hate us anyway.”
ACT-UP, as Kramer’s brainchild, is not about rational persuasion. As the meeting overwhelmingly approved the action, it was clear it was not supported despite its possible drawbacks, but because of them. “Oh, of course it’s a nightmare. That’s what I like about it,” remarked the man sitting next to me. ACT-UP members wish as much to express a contradiction, to give vent to desperation, as to achieve any particular end. Their politics wills the rejection it courts. “They hate us anyway,” as Kramer succinctly put it. In any other group of people, this would be called awish. But among the dying, a wish is also a curious way of staying alive.
It’s no exaggeration to say that this wish, the experience of it, the feel of it, has changed a segment ofpermanently. It has replaced strategies of pleading with those of demanding. It has substituted candor for apology. It has absorbed the momentum of the post-Stonewall sensibility and gone on the desperate offensive. But at the same time, ACT-UP has inevitably alienated a whole group of gay men—those whose own view of their sexuality is more opaque, whose politics is more complex, whose are not so transformed.
“Outing” is the most obvious feature of this rift, a declaration of war by somemen upon others who are less committed in the struggle against . Not so long ago the closet was sacred territory. No fellow would invade its sanctuary. Now every closeted man has to fear the animosity of his fellow as much as straights. This is a conscious strategy of intimidation, one that most ACT-UP members willingly celebrate. And when it isn’t manifested in hate, it finds expression in scorn. “They’re just being left behind,” one angry ACT-UP member told me of closeted and apolitical men. “They’re just not relevant anymore.”
By breaking the taboo against aggressively candid homosexuality and the greater taboo against aggressively candid, ACT-UP has not only strained understanding between and straights. It has also torn apart the code of security among . In the long run this may turn out for the best, as more men acknowledge their sexuality and refuse to be patronized by society as a whole. But in the short run another threat has emerged to the rhythm and unity of . And this one comes from within, and in the rhetoric of transfiguration.
There is a metaphor in Tolstoy’s Theof Ivan Ilych that sticks in the mind. At the very end of his life, Ivan struggles against until finally becoming reconciled: "
Suddenly some force struck him in the chest and side, making it still harder to breathe, and he fell through the hole and there at the bottom was a light. What had happened to him was like the sensation one sometimes experiences in a railway carriage when one thinks one is going backwards while one is really going forwards and suddenly becomes aware of the real direction.
Since almost the beginning of the AIDS crisis,men have had an acute sense of going backward. At first it seemed as if the worst would happen, but there was no massive public backlash, no branding, no quarantine. Then came the more difficult challenge of mass , often unnoticed and almost always misunderstood. quietly and increasingly attained a brutalizing concentration as the number of mounted. As the crisis deepens, it’s hard not to concur with one man with AIDS I met in New York: “How strong can we be? How much ‘empowerment’ does it take? How many support groups do I have to attend to talk about my ‘feelings’? Sometimes I feel weak and afraid, and no one can help do anything about it. I hate it when that happens, but it does.”
Denial is still there: denial of, of the racial and viral barriers that exist among men, of the costs of cathartic political activity. And with this, an avoidance of the intimacy the crisis demands. At this point, perhaps, it is only fair to say that going backward is an understatement. There is no light beneath us in this hole. The hopeful idea that a community is being forged in the face of is untrue, not because it is beyond the capacity of people, but because there is nothing as isolating as one’s own extinction. There is, ultimately, no community of the dying. There are only the dying.
If there is an occasional sense that the railway carriage is actually going forward, it is perhaps in the strengthening ofidentity that has begun to be felt, the knowledge that a new, less ravaged generation of men will replace the one that is soon going to be missing, and that it will surely gain something from knowledge of the current horror. There is also the awareness that we have gained subtle, private strength from meeting in this way. And there is the consolation that at least one myth about , held by and straights alike, has finally been put to rest. It is an irony of the isolating nature of that it is also curiously universalizing. men die like straight men die. Loneliness, it turns out, is not the condition of being homosexual. It is the condition of being human.
This article appeared in the December 17, 1990 issue of the magazine.