Dem Governor Launches Plan to Counter RFK Jr.’s Autism Registry
Illinois Governor JB Pritzker has a plan to undermine the autism registry RFK Jr. keeps talking about.

Illinois Governor JB Pritzker has a plan to protect autism-related data from RFK Jr.’s absurd plans to create a disease registry tracking autistic people.
Pritzker plans to sign an executive order Wednesday that will prevent state agencies from obtaining or disclosing data that personally identifies people with autism, unless it’s required for medical care or legal matters, according to a copy of the order obtained by the Chicago-Sun Times.
“Every Illinoisan deserves dignity, privacy, and the freedom to live without fear of surveillance or discrimination,” Pritzker said in a statement. “As Donald Trump and DOGE threaten these freedoms, we are taking steps to ensure that our state remains a leader in protecting the rights of individuals with autism and all people with disabilities.”
Pritzker’s order comes as RFK Jr. announced the National Institutes of Health is collecting private medical data from government and commercial databases to create a registry of people with autism in the United States. The data will be collected from prescription records, lab testing, and private insurance claims. While the NIH denies it’s a “registry,” RFK Jr. used the word again just this week.
The announcement sparked widespread outrage among autism advocacy groups across the country. A petition against the registry garnered thousands of signatures within 24 hours.
“They are building a list. A list of people like my children. A list of autistic individuals— tracked, labeled, and filed under the guise of public health,” Ryan Smith, the petition starter, wrote in the petition’s description. “This is not support. It is surveillance.”
RFK Jr. has long dehumanized people with autism and spread unbacked claims about the disorder. “These are kids who will never pay taxes, they’ll never hold a job, they’ll never play baseball, they’ll never write a poem, they’ll never go out on a date. Many of them will never use the toilet unassisted,” Kennedy said at a press conference in April.
The lifelong vaccine skeptic has compared the rising rates of autism diagnoses in the U.S. to a preventable epidemic. Autism is not an infectious diseas; it is a lifelong developmental disorder.
With Pritzker’s executive order, Illinois will become the first state to legally restrict the sharing of autism-related data—a clear message to RFK Jr. that every American, even those he looks down upon, has the right to privacy.